Epidermolysis Bullosa Support Worker
Location
St Thomas' Hospital, London
Hours
Full Time (hours not specified)
Salary
£37,259 per annum
About the Role
This is an exciting new post within the world-renowned Epidermolysis Bullosa (EB) Service at St Thomas' Hospital, part of Guy's and St Thomas' NHS Foundation Trust. The post holder will join an established team of Clinical Nurse Specialists (CNS) to provide both administrative expertise and direct support to individuals with EB, a rare genetically inherited skin fragility condition. Responsibilities include non-clinical follow-up, visiting patients in clinics, wards, and occasionally at home, and acting as a key coordinator to ensure high quality care and a positive patient experience for all registered with the service. The role also involves raising awareness of EB and the CNS team's work among local healthcare professionals. The post holder will work within a multidisciplinary team delivering specialist care commissioned by NHS England, supporting patients referred from across the UK. The role requires promoting dignity and human rights through person-centered care principles, ensuring the safety and well-being of service users.
About the Trust
Guy’s and St Thomas’ NHS Foundation Trust is one of the UK’s busiest and most successful NHS trusts, providing specialist and community services across south London and beyond. The Trust is renowned for clinical excellence, research, and teaching, and is part of King’s Health Partners academic health sciences centre. With over 22,700 staff, the Trust is a major local employer committed to diversity, staff development, and delivering high-quality, safe patient care. The Trust maintains a strong focus on innovation and has one of the most ambitious capital investment programmes in the NHS.
Experience
- Experience working within healthcare services
- Experience supporting people with long-term and/or life-limiting conditions
- Experience meeting national and local targets
- Ability to work independently with minimal supervision
About you
- Educated to degree level
- Understanding of equal opportunities
- Knowledge of the role of the EB CNS team in delivering specialist care locally and nationally
- Awareness of recent NHS developments
- Commitment to promoting dignity and human rights through person-centered care principles
Desirable
- Experience working within the NHS or liaising with NHS professionals
- Ability to provide training materials and sessions to a variety of individuals
Additional Information
Guy’s and St Thomas’ NHS Foundation Trust values diversity and is committed to equality of opportunity. The Trust supports flexible working arrangements to promote a healthy work-life balance. Applicants must be eligible to live and work in the UK. This post is subject to a Disclosure and Barring Service check under the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020.
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